{"id":42793,"date":"2025-02-28T09:00:12","date_gmt":"2025-02-28T07:00:12","guid":{"rendered":"https:\/\/edublog.educastur.es\/ixuxu\/?p=42793"},"modified":"2025-03-01T14:44:18","modified_gmt":"2025-03-01T12:44:18","slug":"42793","status":"publish","type":"post","link":"https:\/\/edublog.educastur.es\/ixuxu\/2025\/02\/42793\/","title":{"rendered":"D\u00eda Mundial de les Enfermedaes Rares"},"content":{"rendered":"<p style=\"text-align: left\"><a href=\"https:\/\/www.diainternacionalde.com\/imagenes\/dias\/02-29_dia-mundial-de-las-enfermedades-raras.jpg\"><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter \" src=\"https:\/\/www.diainternacionalde.com\/imagenes\/dias\/02-29_dia-mundial-de-las-enfermedades-raras.jpg\" width=\"435\" height=\"324\" \/><\/a><\/p>\n<p>Cel\u00e9brase l&#8217;\u00faltimu d\u00eda del mes de febreru, dende l&#8217;a\u00f1u 2008. L&#8217;oxetivu de la so conmemoraci\u00f3n, <strong>ye crear conciencia y ayudar a toles persones que carecen dalguna enfermed\u00e1 de les denominaes rares, a recibir de forma oportuna&#8217;l deb\u00edu diagn\u00f3sticu y tratamientu y que, a la llarga, esto garant\u00edce-yos una vida meyor.<\/strong><\/p>\n<ul>\n<li><a href=\"https:\/\/www.youtube.com\/@rarediseaseday\">Canal Youtube<\/a> \/<\/li>\n<\/ul>\n<p><!--more--><\/p>\n<p>Acordies con la OMS, la prevenci\u00f3n non solamente ye <em><strong>\u00abprevenir l&#8217;apaici\u00f3n de la enfermed\u00e1, sin\u00f3n tami\u00e9n detener la so meyora y atenuar les sos consecuencies una vegada establecida\u00bb<\/strong><\/em>. D&#8217;esta forma, la prevenci\u00f3n nun ye solamente que la enfermed\u00e1 nun apaeza; tami\u00e9n ye identificala lo antes posible y actuar cuanto antes pa evitar que s&#8217;agrave.<\/p>\n<p style=\"text-align: center\"><a href=\"https:\/\/www.enfermedades-raras.org\/sites\/default\/files\/2024-02\/encabezado-twitter-y-youtube-dm.jpg\"><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter size-large\" src=\"https:\/\/www.enfermedades-raras.org\/sites\/default\/files\/2024-02\/encabezado-twitter-y-youtube-dm.jpg\" width=\"3750\" height=\"1250\" \/><\/a><\/p>\n<p>Exemplu: (<a href=\"https:\/\/www.elcomercio.es\/asturias\/javier-illan-casos-unicos-asturias-raros-mundo-20250301224512-nt.html\">El Comercio<\/a>): Javier, ingres\u00e1u nel HUCA, colos payasos que faen m\u00e1s llevaderos los ingresos de los ne\u00f1os. Una enfermed\u00e1 ultra rara de la que, hasta esti momentu, nam\u00e1 se diagnosticaren 73 casos nel mundu y ocho n&#8217;Espa\u00f1a. Esti ne\u00f1u rubiu, de g\u00fceyos inmensos y una sorrisa \u00abqu&#8217;alluma a tolos que lu arrodien\u00bb, ye&#8217;l novenu del nuesu pa\u00eds.<\/p>\n<p style=\"text-align: center\"><a href=\"https:\/\/s1.ppllstatics.com\/elcomercio\/www\/multimedia\/2025\/02\/28\/102783349-kIaD--1200x840@El%20Comercio.jpg\"><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter size-large\" src=\"https:\/\/s1.ppllstatics.com\/elcomercio\/www\/multimedia\/2025\/02\/28\/102783349-kIaD--1200x840@El%20Comercio.jpg\" width=\"1200\" height=\"840\" \/><\/a><\/p>\n<p style=\"text-align: center\">\n<!-- iframe plugin v.6.0 wordpress.org\/plugins\/iframe\/ -->\n<iframe loading=\"lazy\" width=\"424\" height=\"238\" src=\"https:\/\/www.youtube.com\/embed\/fIvqxQPjisI\" title=\"Rare Disease Day 2025 official video\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" 0=\"allowfullscreen\" 1=\"\/iframe\" scrolling=\"yes\" class=\"iframe-class\"><\/iframe>\n<\/p>\n<p>&nbsp;<\/p>\n<ul>\n<li>26 de xineru: <a href=\"https:\/\/www.diainternacionalde.com\/ficha\/dia-mundial-enfermedad-kawasaki\" target=\"_blank\" rel=\"noopener\" data-type=\"intlink\" data-entity=\"dia\" data-code=\"dia-mundial-enfermedad-kawasaki\"><strong>D\u00eda Mundial de la Enfermedad de Kawasaki<\/strong><\/a><\/li>\n<li>15 de febreru: <a href=\"https:\/\/www.diainternacionalde.com\/ficha\/dia-internacional-sindrome-angelman\" target=\"_blank\" rel=\"noopener\" data-type=\"intlink\" data-entity=\"dia\" data-code=\"dia-internacional-sindrome-angelman\"><strong>D\u00eda Internacional del S\u00edndrome de Angelman<\/strong><\/a><\/li>\n<li>28 de agostu:<a href=\"https:\/\/www.diainternacionalde.com\/ficha\/dia-mundial-sindrome-turner\" target=\"_blank\" rel=\"noopener\" data-type=\"intlink\" data-entity=\"dia\" data-code=\"dia-mundial-sindrome-turner\"><strong> D\u00eda Mundial del S\u00edndrome de Turner<\/strong><\/a><\/li>\n<li>4 de setiembre:<a href=\"https:\/\/www.diainternacionalde.com\/ficha\/dia-mundial-sindrome-pfapa\" target=\"_blank\" rel=\"noopener\" data-type=\"intlink\" data-entity=\"dia\" data-code=\"dia-mundial-sindrome-pfapa\"><strong> D\u00eda Mundial del S\u00edndrome PFAPA.<\/strong><\/a><\/li>\n<li>7 de setiembre: <a href=\"https:\/\/www.diainternacionalde.com\/ficha\/dia-mundial-concienciacion-duchenne\" target=\"_blank\" rel=\"noopener\" data-type=\"intlink\" data-entity=\"dia\" data-code=\"dia-mundial-concienciacion-duchenne\"><strong>D\u00eda Mundial de Concienciaci\u00f3n de Duchenne<\/strong><\/a><\/li>\n<li>17 de setiembre:<a href=\"https:\/\/www.diainternacionalde.com\/ficha\/dia-mundial-sindrome-kleefstra\" target=\"_blank\" rel=\"noopener\" data-type=\"intlink\" data-entity=\"dia\" data-code=\"dia-mundial-sindrome-kleefstra\"><strong> D\u00eda Mundial del S\u00edndrome de Kleefstra<\/strong><\/a><\/li>\n<li>18 de setiembre:<a href=\"https:\/\/www.diainternacionalde.com\/ficha\/dia-mundial-sindrome-pitt-hopkins\" target=\"_blank\" rel=\"noopener\" data-type=\"intlink\" data-entity=\"dia\" data-code=\"dia-mundial-sindrome-pitt-hopkins\"><strong> D\u00eda Mundial del S\u00edndrome de Pitt-Hopkins<\/strong><\/a><\/li>\n<li>25 de setiembre: <a href=\"https:\/\/www.diainternacionalde.com\/ficha\/dia-internacional-ataxia\" target=\"_blank\" rel=\"noopener\" data-type=\"intlink\" data-entity=\"dia\" data-code=\"dia-internacional-ataxia\"><strong>D\u00eda Internacional de la Ataxia<\/strong><\/a><\/li>\n<li>28 de setiembre:<a href=\"https:\/\/www.diainternacionalde.com\/ficha\/dia-internacional-sindrome-arnold-chiari\" target=\"_blank\" rel=\"noopener\" data-type=\"intlink\" data-entity=\"dia\" data-code=\"dia-internacional-sindrome-arnold-chiari\"><strong> D\u00eda Internacional del S\u00edndrome Arnold Chiari<\/strong><\/a><\/li>\n<li>1 de ochobre:<a href=\"https:\/\/www.diainternacionalde.com\/ficha\/dia-internacional-enfermedad-gaucher\" target=\"_blank\" rel=\"noopener\" data-type=\"intlink\" data-entity=\"dia\" data-code=\"dia-internacional-enfermedad-gaucher\"><strong> D\u00eda Internacional de la Enfermedad de Gaucher<\/strong><\/a><\/li>\n<li>7 de ochobre: <a href=\"https:\/\/www.diainternacionalde.com\/ficha\/dia-internacional-neuralgia-trigeminal\" target=\"_blank\" rel=\"noopener\" data-type=\"intlink\" data-entity=\"dia\" data-code=\"dia-internacional-neuralgia-trigeminal\"><strong>D\u00eda Internacional de la Neuralgia Trigeminal<\/strong><\/a><\/li>\n<\/ul>\n","protected":false},"excerpt":{"rendered":"<p>Cel\u00e9brase l&#8217;\u00faltimu d\u00eda del mes de febreru, dende l&#8217;a\u00f1u 2008. L&#8217;oxetivu de la so conmemoraci\u00f3n, ye crear conciencia y ayudar a toles persones que carecen dalguna enfermed\u00e1 de les denominaes rares, a recibir de forma oportuna&#8217;l deb\u00edu diagn\u00f3sticu y tratamientu y que, a la llarga, esto garant\u00edce-yos una vida meyor. Canal Youtube \/<\/p>\n","protected":false},"author":117,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[6,300],"tags":[],"class_list":["post-42793","post","type-post","status-publish","format-standard","hentry","category-dia-de","category-enfermedaes"],"_links":{"self":[{"href":"https:\/\/edublog.educastur.es\/ixuxu\/wp-json\/wp\/v2\/posts\/42793","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/edublog.educastur.es\/ixuxu\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/edublog.educastur.es\/ixuxu\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/edublog.educastur.es\/ixuxu\/wp-json\/wp\/v2\/users\/117"}],"replies":[{"embeddable":true,"href":"https:\/\/edublog.educastur.es\/ixuxu\/wp-json\/wp\/v2\/comments?post=42793"}],"version-history":[{"count":10,"href":"https:\/\/edublog.educastur.es\/ixuxu\/wp-json\/wp\/v2\/posts\/42793\/revisions"}],"predecessor-version":[{"id":42890,"href":"https:\/\/edublog.educastur.es\/ixuxu\/wp-json\/wp\/v2\/posts\/42793\/revisions\/42890"}],"wp:attachment":[{"href":"https:\/\/edublog.educastur.es\/ixuxu\/wp-json\/wp\/v2\/media?parent=42793"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/edublog.educastur.es\/ixuxu\/wp-json\/wp\/v2\/categories?post=42793"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/edublog.educastur.es\/ixuxu\/wp-json\/wp\/v2\/tags?post=42793"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}