{"id":55375,"date":"2025-08-09T12:09:17","date_gmt":"2025-08-09T10:09:17","guid":{"rendered":"https:\/\/edublog.educastur.es\/ixuxu\/?p=55375"},"modified":"2025-08-09T22:10:23","modified_gmt":"2025-08-09T20:10:23","slug":"el-cuentu-carmen-y-el-anillo-magico-busca-concenciar-sobro-la-bpan","status":"publish","type":"post","link":"https:\/\/edublog.educastur.es\/ixuxu\/2025\/08\/el-cuentu-carmen-y-el-anillo-magico-busca-concenciar-sobro-la-bpan\/","title":{"rendered":"El cuentu &#8216;Carmen y el anillo m\u00e1gico&#8217; busca concenciar sobro la BPAN"},"content":{"rendered":"<div class=\"padding-t-35\">\n<ul>\n<li class=\"font-size-xxl margin-b-5 font-weight-b color-b-050 letter-spacing--1 fuente-corporativa\"><a href=\"https:\/\/www.rtpa.es\/noticias-sociedad-ast\/2025-08-08\/El-cuentu-'Carmen-y-el-anillo-magico'-busca-concenciar-sobro-la-BPAN_111754657158.html\">RTPA<\/a> \/<\/li>\n<\/ul>\n<\/div>\n<div class=\"padding-t-0 padding-b-20\"><\/div>\n<div id=\"area_imagen_ac\"><\/div>\n<div id=\"multimedia\" class=\"capa_imagen_player img-det-not\">\n<div id=\"mediaplayer\">\n<div id=\"video-a-reproducir9368316866\" class=\"video-js vjs-default-skin vjs-16-9 vjs-big-play-centered vjs-paused vjs-fluid video-a-reproducir9368316866-dimensions vjs-controls-enabled vjs-workinghover vjs-v8 vjs-user-active vjs-layout-medium vjs-hls-quality-selector\" lang=\"es\" role=\"region\" aria-label=\"Reproductor de Video\">\n<div class=\"vjs-poster\"><img decoding=\"async\" class=\"aligncenter\" src=\"https:\/\/www.rtpa.es\/fotos\/\/25\/08\/20250808133855_RTPA6960364.webp\" alt=\"\" \/><\/div>\n<p><button class=\"vjs-big-play-button\" title=\"Play Video\" type=\"button\"><\/button><span id=\"irPosicionTranscripcion\" class=\"ir-a-momento-actual cursor-p display-ib padding-t-6 padding-b-4 padding-l-6 padding-r-10 margin-l-5 bg-c-secondary c-white border-radius-4 visibility-h\"><i class=\"\"><\/i><\/span><\/div>\n<\/div>\n<\/div>\n<div id=\"noticiacompleta\" class=\"parragraph-padding font-c-conent\">\n<p class=\"font-size-m padding-b-20 font-weight-b margin-t-16\">El proyectu recalda fondos pa la investigaci\u00f3n d&#8217;esta enfermed\u00e1 ultrarrara.<\/p>\n<p><!--more--><\/p>\n<p><em>Carmen tien 13 a\u00f1os y ye la \u00fanica persona n&#8217;Asturies con BPAN, una enfermed\u00e1 ultrarrara descubierta fai menos de 10 a\u00f1os. Ana, una amiga de la familia, narra la so hestoria nun cuentu, \u2018Carmen y el anillo m\u00e1gico&#8217;, col que busca concenciar y recaldar fondos pa la investigaci\u00f3n.<\/em><\/p>\n<p>Con esti cuentu, Ana quier averanos a la realid\u00e1 de Carmen y recaldar fondos pa la investigaci\u00f3n del BPAN, una enfermed\u00e1 ultrarrara con ente 12 y 14 casos n&#8217;Espa\u00f1a y 170 en tol mundu.<\/p>\n<p>El trestornu xen\u00e9ticu que sufre Carmen, la \u00fanica ne\u00f1a diagnosticada n&#8217;Asturies, afecta al so sistema nerviosu y d\u00e9bese a una acumuladura anormal de fierro nel celebru.<\/p>\n<p>So madre Luisa Fern\u00e1ndez tuvo que dexar de trabayar pa ocupase de la so f\u00eda. Como ayuda, la familia cunta nam\u00e1s cola de la dependencia.<\/p>\n<p>Anque la investigaci\u00f3n avanzara nos \u00faltimos a\u00f1os, sigue habiendo munches inc\u00f3gnites sobro esta mutaci\u00f3n xen\u00e9tica, descubierta fai solo 13 a\u00f1os.<\/p>\n<p>Am\u00e1s de lo que se recalde col llibru d&#8217;Ana, busquen m\u00e1s formes de consiguir fondos. La pr\u00f3xima: la carrera &#8216;Kil\u00f3metros pol Sua\u00f1u de Carmen&#8217; el 6 de setiembre entre Lluanco y Cand\u00e1s. Les inscripciones van tar abiertes hasta&#8217;l d\u00eda 1.<\/p>\n<\/div>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>RTPA \/ El proyectu recalda fondos pa la investigaci\u00f3n d&#8217;esta enfermed\u00e1 ultrarrara.<\/p>\n","protected":false},"author":117,"featured_media":0,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1],"tags":[],"class_list":["post-55375","post","type-post","status-publish","format-standard","hentry","category-sin-categoria"],"_links":{"self":[{"href":"https:\/\/edublog.educastur.es\/ixuxu\/wp-json\/wp\/v2\/posts\/55375","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/edublog.educastur.es\/ixuxu\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/edublog.educastur.es\/ixuxu\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/edublog.educastur.es\/ixuxu\/wp-json\/wp\/v2\/users\/117"}],"replies":[{"embeddable":true,"href":"https:\/\/edublog.educastur.es\/ixuxu\/wp-json\/wp\/v2\/comments?post=55375"}],"version-history":[{"count":1,"href":"https:\/\/edublog.educastur.es\/ixuxu\/wp-json\/wp\/v2\/posts\/55375\/revisions"}],"predecessor-version":[{"id":55376,"href":"https:\/\/edublog.educastur.es\/ixuxu\/wp-json\/wp\/v2\/posts\/55375\/revisions\/55376"}],"wp:attachment":[{"href":"https:\/\/edublog.educastur.es\/ixuxu\/wp-json\/wp\/v2\/media?parent=55375"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/edublog.educastur.es\/ixuxu\/wp-json\/wp\/v2\/categories?post=55375"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/edublog.educastur.es\/ixuxu\/wp-json\/wp\/v2\/tags?post=55375"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}